Africa will have to wait.....

for never probably........

I spoke to my neurologist about the vaccines I need to get to go to Africa, and she said she did not think it would be a good idea. Considering the active lesions, my immune system being a wreck, and being on new meds, it is probably not a good time to add live vaccines to the mix. She was particularly concerned about the Malaria vaccine. The old neurologist said he wanted me to be on the meds for a while, then do another MRI to see what was going on, then he would decide about the vaccines. The new neuro said it would not change her thoughts on the vaccines either way. I prayed on it, and when I woke up there was an email from Ken telling me he did not want to think about the possible complications from the vaccines and that taking that chance was not good in his mind. So there you go.......

I retracted my position for the trip and told the pastors I could not go. I asked that they give the money I have raised already to another lady in the church who I have been talking about the trip with. At least I could bless someone from the work I did to raise that money!!

Oh the pain....

I started taking Synthroid on Saturday morning and along with it (I think) came a nasty little migraine. I have had a headache for 2 straight dats. So far today it is not here (Thank God) but it was really bad yesterday. I was given a very expensive Migraine medicine that did not even touch it. That medicine was way too expensive not to work like a magic wand!!

Anyway, other than the headaches, I have been feeling pretty good. I upped my Betaseron dose on Friday night (might have caused the headaches) so it is hard to know what caused the headaches.

Started Synthroid Today

So hopefully I will see some results from this~! I have gained over 30 pounds in the past 3-6 months and I am not happy about it, but now I know why! Hopefully the Sythroid will help me lose the weight and get to feeling better energy wise. The past week has been pretty good, but long term it should really help.

I woke up with a headache this morning and did not sleep well last night. I upped my Betaseron titration last night and I forgot to take a sleeping pill. I do not know what it is about those shots, but I do not sleep well on the nights I take them without a sleeping pill. I guess I will have to make up for that tonight or today sometime! :)

Visit w LLMD Today

I went to see him and he was pleased with all my new info. He was so happy to see that I found a neuro that believes in Lyme in Texas. She was very open to the treatment he has me on and told me to stick with it. He said he was going to be giving her a call as he needs a local neuro for his Lyme patients. He also told me I must be speeding or something today - I feel awesome and happy and it is a very good day. Probably the best one I have had in 6-8 months!! And that was just how I woke up today! Go figure!!!

Anyway, he gave me a prescription for Synthroid to get started on ASAP. He was floored that the old neuro did not call me as soon as he had the results and have me on meds already. I told him that is why he was fired, and that he did not return my phone calls. He did not seem too worried about the blood pressure since it is not staying high, just goes high once in a while. It probably is from the steroids as they take about 6 weeks to clear your body. I go back to see him in a month and we will see how things are then. He needs to start treating the babesia and erlichiosis with a different antibiotic but he wanted to talk to the neuro first.

New Neuro....

Well today I met with my new neurologist and she is a keeper. I like her personality...... She knows the specialist in Houston I saw and she says he has no personality...I agree. She seems to be a stright forward type person which I like to have in a doctor!



Anyway, she is running an EEG on July 21st, sometime I will have another MRI of the lumbar region on my back, and she wants to do an MRA, and several tests called Evoked Potentials. She is also going to have some congitive evaluation done so we can get a good baseline of where I am at now, and have a comparison for the future.



Currently she gave me a few more meds (whoooopppeeeee) and says to stay on the Betaseron. She wants to follow me on this for a while. She thinks my MS is an aggressive form, but it is still classifed as Relasping Remitting MS. She wants more MRI's done but does not think my insurance will pay for some since I had some done back in May.



I am off to see the LLMD tomorrow. New Neuro thinks I do have both MS and Lyme and she wants me to keep up on the treatment with LLMD. I also have to get him to look into the Thyroid issues and talk about my blood pressure. It was 153/107 today when they checked it in the office. last night it was 104/68 which is (low) normal for me......don't know what today was about!

She is also talking about a treatment called IVIg. I think she will talk more about that after I get through all these tests mentioned above.

And Now........Thyroid Issues

So today I called the (fired) neuro and asked about the blood work he had done on the 10th (today is the 24th right?) and he said I was normal on the B12 levels, and that my thyroid TSH level was 8.4. They want this to be .5 to 3.0...NOT 8.4. Just another fun thing to add to my already full plate in the realm of my medical situation......

So with the history in my family of thyroid (mom had thyroid cancer about 4 years ago and grandmom had hypo & hyper-active thyroidism) I do not like the looks of this new development!!

I will find out more Thursday when I have a follow up with my ob/gyn/LLMD, and the new neurologist.

Feeling Better!!

I think I am completely through my most recent episode with MS. I started feeling almost normal on Saturday and since then I have felt pretty good. My energy levels have been good and I have actually been able to get out and about. Today we are actually doing school - it has been a little while since we did an actual full day since I have been feeling bad.

Hopefully there will be a long time before my next relapse!!!