Day 2 with Acthar Gel

I did my 2nd injection of Acthar gel today and it burned a little. I did it in the left thigh today and that one is never numb so it was a little more painful, but still nothing too severe. 5 more shots to go and this treatment will be done.

I have had a pretty busy day and I have felt very good for most of it. I am getting a little tired right now and may need a short nap soon. All in all though the past 2 days have been good ones!!

I should get the Betaseron in the mail tomorrow and when the nurse comes to train me on it, I will get started on that every other day.

I have another neuro appointment with a new doctor on the 26th and if it goes well, I think I will switch to her practice. I need someone that will listen and not be wishywashy either.

Should it be the MSnews now?

I have started treatment for the MS now. I gave myself my first injection of Acthar gel today and it was not as bad as the anticipation. I am fairly well educated in the medical field (I watch ER, Gray's, and many TLC & Discovery Health shows) and so I figured I would have no problem doing this myself. Ok, well I tried to get training and it was just not going at the speed I wanted it taken care of, so I was told over the phone how to do it by the prescribing Dr.'s nurse. I had also already watched a video about subcutaneous injections for Betaseron, which I will be starting soon, and felt pretty comfortable with it. It actually was not bad. I did it in the thigh and did not even flinch. The kids watched me do it from across the room (after we had needle education 101) and then I just did it. I have a pretty high pain tolerance but usually CAN NOT watch even when they draw my blood so this was a pretty pleasant experience.......as far as self injections can be I guess. :)

Frikkin' Tired......

of being tired!!! Unfortunately it is a symptom/side effect of my diseases, and it is really kicking my butt here lately. I MUST take a nap every day or I cannot keep my eyes open. I love to nap, don't get me wrong, but I also want to be able to get out of the house and do stuff with the kids!!

Today I got on a coughing spell (still trying to clear the reminants of the bronchitis) and hacked all day almost. My throat is sore and scratchy and hoarse now. I thought if it got any worse I was going to be heading to the ER. I got to the point where Iwas gasping for air and could not get a good breath. Not Fun!!!

I received the Acthar today in a cooler delivered by FedEx. I have all the stuff I need except the training. Guess I will call on that tomorrow. I also did not hear about the Betaseron yet......

I did get a huge box of supplements today I had ordered last week. Kinda like Christmas with all the packages coming, just wished it was someting more fun to open!!