Neuro Visit

Well today I saw the neuro today and she had all my test results. The EEG, Evoked Potentials, MRA and Neuropsychology tests all came back with good results. I was even cleared by the Psychologist - I am NOT CRAZY!! :)

I will have to go in the next week and get another MRI series. This one will be from the head to the lower back. She also wants me to have IVIg infusions. I am not sure about this though. I am kinda freaked out by it!! I looked on my insurance and I do not think it is covered anyway, so that is also a factor......it is really expensive to have it done. You go for 1-2 weeks of daily infusions then you go 2 times a month after that.

Last week I saw the LLMD and he changed my meds, and I no longer take Doxy and Ceftin for Lyme. We are working on the other co-infections now with Flagyl and Azithromiacin. I guess we will see how that goes in a few weeks.

Daily Prayer Sent From a Friend

For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do. Ephesians 2:10

Lord, thank you for creating me on purpose with a purpose. And I thank you that not only does my life have purpose, but you have created purpose for each of my days as well. Please focus my affections on you, on the people you place before me and on the good works that you have prepared in advance for me to do because I don't want to miss out on you today! In Jesus Name, Amen.

No news is Good News Right?

No news around here....waiting to go this week for my final baseline tests, neuropsych evaluation is on Wednesday and I have my 6 week follow up with the neurologist.

Oh, I did have a strange reaction to my Betaseron shot Friday night. I usually take advil with it and a muscle relaxer, but for got the advil. About an hour later I started feeling like my hands and arms (to the elbow) were contracting or something. It was a very painful couple of hours. I finally took some more meds, and laid with a heating pad over my hand and arms for about 30 minutes or so. Ihave never had this type raction before. I did not forget to take advil tonight before my shot!! My hands still ache some and have been a little swollen since then, but most of the pain went away. Thank goodness!

Headaches

Since Sunday I have been experiencing these weird headaches. I am getting a sharp pain either behind my eyes or in the back of my head and it feels like an ice pick is being shoved through to my eyeballs (graphic right?). If I move my eyes in any direction, my right eye is really feeling a strain like a muscle pull, but severely intense. I have read about Optic Neuritis which is an MS problem some people experience and I do not know if this is what I have now or just some random pains. I go see the neuro next Wednesday and hopefully will know more about this before then.....I left a message today and have not heard back yet.

What a day!!

I had an awesome day Saturday. I think it was the most normal (feeling) day I have had in a long time!! I got to catch up with some old friends and celebrate my oldest friend's parents' 40th anniversary. What a blessing to see people I have not seen in YEARS and to feel like it was just yesterday in many ways. I loved seeing my friend's siblings all grown up(which is weird in itself), and her parents who have always meant a lot to me - so sweet and caring!! I met her new love and re-met all of her boys who are also so grown up now - like a flashback but with new details if that makes any sense!

Too Many Pills!!

A friend shared this poem on a website I frequent.....I do not know who wrote it but it is great!!




Too Many Pills
A row of bottles on my shelf,
Caused me to analyze myself.
One yellow pill I have to pop,
Goes to my heart so it won't stop.
A little white one that I take,
Goes to my hands so they won't shake.
The blue ones that I use a lot,
Tell me I'm happy when I'm not.
The purple pill goes to my brain,
Then tells me that I have no pain.
The capsules tell me not to wheeze,
Or cough or choke or even sneeze.
The red ones, smallest of them all,
Go to my blood so I won't fall.
The orange ones, very big and bright,
Prevent my leg cramps in the night.
Such an array of brilliant pills,
Helping to cure all kinds of ills.
But what I'd really like to know...........Is what tells each one where to go!

New Symptoms or side effects?

I am up to full dosage on my shot I take every other day now. I had a shot tonight and did my usual stuff and I feel like I have literally been run over. I have a sudden onset migraine and my right side is having issues in the arm and hand, feeling like someone is pounding on them with a metal hammer, my right chest/rib cage feels like someone is slightly kicking it, and my right foot and leg are tensed up and throbbing, and both legs are really weak.

I coughed all day today. I went to do some errands and the heat and humidity gets me to hacking some and I STILL have congestion from the bronchitis I had in May. My throat is pretty raw and scratchy feeling tonight, and I have finally stopped the really bad coughing I was doing.

Guess I will be making a phone call in the AM if this is still going on to see about getting into the neuro earlier then the 14th.